poster

Our Curse

Documentary

5.8

Release Date

May 28, 2013

Duration

27 min

Status

Released

Language

pl

Overview

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.

Casts

Tomasz Śliwiński

Self

Tomasz Śliwiński

Magda Hueckel

Self

Magda Hueckel

Leo Hueckel-Śliwiński

Self

Leo Hueckel-Śliwiński

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